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An important part of our mission at Memory Matters is to inform and educate and to provide resources and referrals. We hope your find these resources useful.

Organizations

  • Administration for Community Living

    part of the U.S. Department of Health and Human Services offers information, referral and outreach efforts at the community level to educate older people and their caregivers about benefits and services available to help them.

    Administration for Community Living
    (202) 357-3566
    www.acl.gov

  • Aging and Disability Resource Center of the Lowcountry (ADRC)

    a federally mandated program and is part of the Lowcounty Council of Governments. Lowcountry ADRC administers programs such as Family Caregiver Advocate, Information, Referral and Assistance, Insurance Counseling Assistance and Longterm Care Ombudsman.

    Aging and Disability Resource Center of the Lowcountry (ARDC)
    (877) 846-8148
    www.lowcountrycog.sc.gov/aginganddisability

  • Aging Parents and Elder Care

    provides tips for daily living, checklists regarding topics such as elderly driving and home safety, as well as connections to support groups.

    Aging Parents and Elder Care
    www.aging-parents-and-elder-care.com

  • Alzheimer's Disease Education and Referral (ADEAR)

    Center is part of the National Institute on Aging and provides publications and information on Alzheimer's disease, a data base of clinical trials, recommended reading lists and referrals to local resources.

    ADEAR Center
    (800) 438-4380
    www.alzheimers.org

  • Alzheimer's Disease Cooperative Study

    a cooperative agreement between the National Institute on Aging and the University of California, San Diego to advance research in drug development for Alzheimer's disease and to develop and evaluate clinical trials with the goal of treating and preventing Alzheimer's disease.

    Alzheimer's Disease Cooperative Study
    http://www.adcs.org
    email: brainlink@ucsd.edu

  • Alzheimer's Association

    a national, non-profit organization offering education and support. Chapters offer referrals to local resources.

    Alzheimer's Association
    800-272-3900
    http://www.alz.org

  • Alzheimer's Foundation of America's

    mission is to provide optimal care and services to individuals confronting dementia, and to their caregivers and families, through referrals to member organizations dedicated to improving quality of life.

    Alzheimer's Foundation of America
    (866) 232-8484
    www.alzfdn.org

  • Alzheimers.net

    provides an online community of state-specific caregiver resources.

    Alzheimers.net
    (888) 704-7779
    www.alzheimers.net

  • ARCH National Respite

    promoted the development of respite programs and helps families locate respite services.

    ARCH National Respite
    www.archrespite.org

  • BrightFocus Foundation

    funds research seeking cures for Alzheimer's disease, age-related macular degeneration and glaucoma and provides the public with information about risk factors, treatments and coping strategies. The website also provides an Alzheimer's question & answer section.

    BrightFocus Foundation
    (800) 437-2423
    www.brightfocus.org

  • Brookdale Foundation Group

    includes the Brookdale Foundation, Glendale Foundation, and Rampo Trust which were all endowed by the Schwartz Family with the common goal of promoting senior services. Through dissemination of its funds, the Brookdale Foundation group support group respite, early memory loss and fellowship programs.

    The Brookdale Foundation Group
    (201) 836-4602
    www.brookdalefoundation.org

  • Caregiver Action Network

    a non-profit organization offering education and resources to the more than 65 million Americans who care for a chronically ill, aged, or disabled loved one.

    Caregiver Action Network
    (202) 772-5050
    www.caregiveraction.org

  • Caregiver Media Group

    provides information and support for personal as well as professional caregivers through their publication, "Today's Caregiver" as well as online discussions, list and chat rooms

    Caregiver Media Group
    (800) 829-2734
    www.caregiver.com

  • CarePathways

    offers information, tools, and database to help families with care planning and decision making. Created and maintained by RN's, CarePathways provides a direst connection to ask RN's about home care, longterm care, and dementia.

    CarePathways
    (877) 521-9987
    www.carepathways.com

  • Caring Connections

    part of the National Hospice and Palliative Care Organization and provides information related to care planning, care giving, living with an illness, and grief.

    Caring Connections
    (800) 989-9455
    www.caringinfo.org

  • Daily Strength

    a free, anonymous, online support group forum.

    Daily Strength
    www.dailystrength.org

  • Eldercare Locator

    a national directory assistance service helping older people and caregivers locate resources. Funded by the U.S. Administration on Aging whose website is http://www.aoa.gov, it also features information on Alzheimer's disease.

    Eldercare Locator
    800-677-1116
    www.eldercare.gov

  • Family Caregiver Alliance

    offers support services for those caring for adults with Alzheimer's disease, stroke, traumatic brain injuries and other cognitive disorders.

    Family Caregiver Alliance
    (800) 445-8106
    www.caregiver.org

  • Fischer Center for Alzheimer's Research Foundation

    offers information and research, treatments and brain fitness exercise. It also provides an "Ask the Expert" feature as well as a resource locator for services such as geriatric physician and elderlaw attorneys.

    Fisher Center for Alzheimer's Research Foundation
    www.alzinfo.org

  • Full Circle of Care

    gives support and assistance to those caring for older family members. It addresses care giver stress, safety issues, financial concerns as well as a host of other topics.

    Full Circle of Care
    www.fullcirclecare.org

  • Hands on Health

    a collection of links to health websites. Topics include: diseases and health issues, environment, and medications.

    Hands on Health
    (843) 792-3303
    www.handsonhealth-sc.org

  • Hartford

    gives information on dementia's potential impact and driving safety. It provides driving evaluations and pointers on how to have a discussion about driving with loved ones.

    The Hartford
    www.thehartford.com/advance50/dementia-driving

  • Help Guide

    provides mental health information, caregiving tips and resources for various types of dementia. Among its 200 articles, help guide also address prevention methods, legal documents, and grief.

    Help Guide
    www.helpguide.org

  • Lotsa Helping Hands

    a service offered by the Caregiver Action Network that provides a caregiving calendar for family and friends. A coordinator makes a list of what helpers can do and then invites people to be part of the calendar's community.

    Lotsa Helping Hands
    www.lotsahelpinghands.com

  • Medicare.gov

    the official U.S. Government site for Medicare coverage, forms and resources.

    Medicare.gov
    (800) 633-4227
    www.medicare.gov

  • Medicare: South Carolina Healthy Connections

    provides information to apply for coverage, find providers, and obtain the latest related news.

    Medicare: South Carolina Healthy Connections
    (888) 549-0820
    www.scdhhs.gov

  • Met Life's Cure for Alzheimer’s Fund

    a non-profit organization that was created in 2004 with the focused goal of funding research for a cure.  The three founding families cover all administrative expenses, so every donated penny is guaranteed to go toward research funding. Cure for Alzheimer’s Fund, in partnership with Met Life Foundation, recruited four stellar filmmakers to document true-life stories about people facing the challenges of Alzheimer’s. We are honored and privileged that Memory Matters’ program was the topic of one of the films.

    Met Life's Cure for Alzheimer's Fund
    (781) 237-3800
    www.curealz.org

  • National Council on Aging

    "Benefits Check Up" helps people ages 55 and over find programs that may pay for some of their costs related to prescription drugs, health care, utilities, and other essential needs.

    National Council on Aging "Benefits Check Up"
    http://www.benefitscheckup.org

  • National Institute on Aging

    part of National Institute of Health and is the federal government's lead agency for research on Alzheimer's disease. NIA also offers information about health and aging.

    National Institute on Aging
    (800) 222-2225
    (800) 222-4225 (TTY)
    www.nia.nih.gov

  • National Library of Medicine

    part of the National Institute of Health and is the world's largest biomedical library with a searchable health information database. A service called MEDLINE is accessible via the internet.

    National Library of Medicine
    (888) 346-3656
    www.nlm.nih.gov

  • Nursing Home Abuse Center

    resource educating the public on the risks of senior abuse in an attempt to save lives and rebuild shattered trust.

    Nursing Home Abuse Center
    http://www.nursinghomeabusecenter.com

  • Project Lifesaver

    a radio frequency tracking service offered by the Beaufort County Sheriff's Office for people with dementia who are at risk of wandering. Each participant is fitted with a personalized Project Lifesaver wristband. Criteria includes the participant is willing to wear the wristband and there is a 24-hour caregiver (which includes assisted-living facilities).

    Project Lifesaver
    Sgt. Katrina Light (843) 255-3410
    Cpl. Meredith Florencio (843) 255-3419
    www.bcso.net/projectlifesaver.html

  • SC Access

    a program of the Lieutenant Governor's Office on Aging that offers assistance in finding aging and adult disability services in various South Carolina communities.

    SC Access
    (800) 868-9095
    www.scaccesshelp.org

  • ThisCaringHome.org

    focuses on home safety tips for people with dementia. The user can check on a room in a virtual house and read safety recommendations. The site, winner of the 2010 National Alzheimer's Caregiver Award, also suggests devices for home safety such as an automatic stove shut off.

    ThisCaringHome.org
    www.thiscaringhome.org

  • Well Spouse Foundation

    gives support to spouses and partners of the chronically ill and/or disabled to help overcome the effects of isolation.

    Well Spouse Foundation
    (800) 838-0879
    www.wellspouse.org

Recommended Reading

Amen, Daniel G.  Change Your Brain Change Your Life:  The breakthrough program for conquering anxiety, depression, obsessiveness, anger, and impulsiveness. New York: Three Rivers Press. 1998

Brackey, Jolene.  Creating Moments of Joy for the Person with Alzheimer's or Dementia:  A journal for caregivers. 4th ed. Jolene Brackey. 2007

Broyles, Frank. Coach Broyles' Playbook for Alzheimer's Caregivers: A practical tips guide. Fayetteville: University of Arkansas. 2006

Callone, Patricia R. A Caregiver's Guide to Alzheimer's Disease: 300 tips for making life easier. New York: Demos Medical Publishing. 2006

Coste, Joanne Koenig. Learning to Speak Alzheimer's: A groundbreaking approach for everyone dealing with the disease. New York: Houghton Mifflin Company. 2003

Dyer, Joyce. In a Tangled Wood: An Alzheimer's Journey. Dallas: Southern Methodist University Press. 1996

Genova, Lisa. Still Alice. New York: Gallery Books. 2009

Kakugawa, Frances. Mosaic Moon: Caregiving through poetry. Honolulu: Watermark Publishing. 2002.

Mace, Nancy L. and Peter V. Rabins. The 36-Hour Day: A family guide to caring for people  who have Alzheimer disease, related dementias, and memory loss. 5th ed. New York: Grand Central Life and Style. 2012

Nussbaum, Paul David. Save Your Brain: 5 things you must do to keep your mind young and sharp. New York: McGraw Hill. 2010

Shenk, David. The Forgetting: Alzheimer's : Portrait of an epidemic. New York: Anchor Books. 2003.

Shriver, M. What's Happening to Grandpa? New York: Time Warner Book Group. 2004.

Research and Clinical Trials

Medical institutions are constantly conducting research and clinical trials related to Alzheimer's disease and other types of dementia. If you are interested in learning more about studies in the Southeast, please reference the below information:

Alzheimer's Association
Trial Match (800) 272-3900
www.alz.org/research/clinical_trials/find_clinical_trials_trialmatch.asp
 
Coastal Neurology
Jenna Webb, Research Coordinator
(843) 522-1420
www.coastalneurology.com
 
Duke University
Bryan Alzheimer's Disease Research Center
(866) 444-2372
http://adrc.mc.duke.edu
 
Georgia Regents University
Alzheimer's Research Center
(706) 721-9462
www.gru.edu/centers/alz/
 
Mayo Clinic
(800) 664-4542
www.mayo.edu/research/clinical-trials
 
Medical University of South Carolina
Alzheimer's Research and Clinical Program
(843) 724-2302
www.musc.edu/arcp
 
U.S. National Institutes of Health
Clinical Trials
www.clinicaltrials.gov